On Long COVID Awareness Day, a concerted push for more focused research and treatment of long COVID and related post-infection illnesses has emerged. Advocates are urging the National Institutes of Health (NIH) to establish a dedicated office for the research and treatment of long COVID, ME/CFS, Lyme disease, Ehler-Danlos syndrome, POTS, and other post-infection illnesses. The proposed office aims to increase funding and support for studying these diseases, amid growing concern over the lack of effective treatments. Clinical trials targeting autonomic nervous system dysregulation, a key factor in long COVID symptoms, are underway. Additionally, preclinical research in 2023 has highlighted potential targets for pain relief in long COVID, addressing one of the condition's most debilitating symptoms. The push for heightened awareness and research funding comes as studies continue to unravel the complex pathophysiology of long COVID, including its causes and the lingering effects such as interstitial lung disease in severe cases. Discussions also include SARS-CoV-2 biosafety and expanded airport pathogen sampling. A Science Friday episode discussed the need for heightened awareness, funding, and research support. Chronic fatigue syndrome and sensory symptoms like chronic pain, along with immune dysfunction, are key focuses.
Chronic Fatigue Syndrome, long dismissed by doctors, causes immune system dysfunction and other problems. But treatments are lacking. https://t.co/7a5wVAx4TZ
Preclinical research in 2023 sheds light on the causes of sensory symptoms such as #ChronicPain in #LongCovid—and revealed targets that might be exploited for pain relief in this debilitating condition. @ra_serafini @virusninja #LongCovidAwarenessDay https://t.co/ZrUmWuSuur https://t.co/lZ4X02aTsM
On #LongCovidAwarenessDay, check out this research from 2022, which showed lingering interstitial #LungDisease in severe cases of #COVID19 may be driven by #neutrophils in an inflammatory immune response. https://t.co/hePbxMFXUm @SinganayagamLab @DrPeter_George @drAnand_Shah_ https://t.co/ZvTgJHFlBB
“Long Covid provides an opportunity to understand how acute infections cause chronic disease” https://t.co/Fhrx6QVMfu
Why ME/CFS is still so poorly researched and treated | Letters https://t.co/kH6jDm069w
This Medical News article discusses a new US National Institutes of Health study of patients with the chronic—and chronically misunderstood—chronic fatigue syndrome. https://t.co/6ymZDFIZjV @qeastman https://t.co/2DNA1nWNCI
What causes #LongCovid? Untangling the complex syndrome is a laborious, step-wise process. For #LongCovidAwarenessDay, check out these illustrations by @ashleymastin_ representing Long Covid causes and symptoms. https://t.co/qHSUXi8HEd
A timely episode of Science Friday @scifri on this #LongCovidAwarenessDay. I got to discuss pathophysiology, and the need for heightened awareness of #longCOVID, funding, research, support, prevention and treatment with the awesome @ahandvanish👇🏽 https://t.co/46BgPnbTgt
On #LongCovidAwarenessDay we need much more than just awareness—desperately in need of clinical trials to test and validate effective treatments
NEW: Inside the push to create an NIH office* for infection -associated chronic diseases Proponents are hammering out a proposal to increase funding for studying diseases like ME/CFS, long Covid, Lyme, and more. *orrrr center, czar, TBD https://t.co/EhsVb7siYQ
Some news stories broke yesterday, a very bad timing. It was #LongCOVID awareness day. Î have not commented on this, due to the timing and it not being novel (pre-print). https://t.co/cB1Cpc7lQf 1/7
Advocates want NIH to create an office to pursue research and treatment of long Covid, ME/CFS, Lyme disease, Ehler-Danlos syndrome, POTS, and other post-infection illnesses. https://t.co/0tLU6U05gP
Quick takes: Long-COVID treatment, SARS-CoV-2 biosafety, expanded airport pathogen sampling The long COVID treatments in the trials target autonomic nervous system dysregulation, which triggers some of the most burdensome symptoms. https://t.co/C60IzjTtE1